On average, those who get tested in the Multiplex Initiative received results indicating that they carry four to 10 risk versions of individual genes. However, having a risk version of one of the 15 genes on the multiplex genetic test does not mean that a person is certain to get the condition - only that he or she might have a greater chance of developing the disorder. There are many things other than genetics that contribute to the risk of common diseases, including lifestyle factors such as diet, exercise, smoking, and sun exposure.
Once enrolled, participants were asked to review information online about the multiplex genetic test and to decide whether they were interested in taking the test. Those who agreed to testing met with a research educator, who provided more information about the risks and benefits of testing and obtained the patient's written consent.
Test results were mailed to participants. Trained research educators called the participants to help them interpret and understand their results. The study also included follow-up interviews with participants three months after receiving their results.
To protect patient privacy, test results obtained during the Multiplex study were destroyed by Henry Ford Health System; they do not automatically become a part of participants' medical records. But participants who wanted to share their test results with their health care providers could do so.
Source: Henry Ford Health System